October 6 is World Cerebral Palsy Day
It is a day to celebrate the lives of those with Cerebral Palsy.
Diagnosed early on in life, Cerebral Palsy is the most common physical disability among children. It is a permanent disability that affects movement. CP is caused by a brain injury that occurs before, during or after birth. Muscle tone, coordination, balance, and posture can be affected. The effects of CP vary from person to person.
I want to show you those who have CP and celebrate all that they are.
Roman is a 5-year-old from New Orleans, Louisiana. He has a zest for life. He loves music. He rocks out to Jazz, Oldies, and Metal daily. He is learning how to read music and to play the piano. Roman is a people person. He speaks to everyone and remembers everyone’s name. He loves football and baseball. He plays baseball on the Miracle League and he rides horses twice a week. He is a true storyteller and an old soul. He is gentle and kind yet fiercely determined. He has cerebral palsy. After a big intervention and training like an athlete, Roman started independently walking in March, 6 months ago.
Maya is a vibrant, happy, and adventurous 6-year-old from Traverse City, Michigan. Maya Loves school, her brothers, Winter the dolphin and her 3 legged dog Abby. Maya is always up for the next challenge. She exudes confidence. Maya has cerebral palsy. Over the last year, Maya has gone from taking her first steps to walking around her house.
Reynold is a 7-year-old from Pembroke Pines, Florida. He loves football and baseball. People are amazed by his knowledge of sports. Reynold has heart and persistence. He does not back down to a challenge. Reynold has cerebral palsy. Reynold spends every summer and every day after school working hard in therapy. Reynold started walking independently 18 months ago.
Angler is a 6-year-old from Tennessee. Fishing, Baseball, and his daddy are his loves. He fishes with his dad and plays baseball on the Miracle League. Angler loves the outdoors. He is a country boy at heart. He confidently runs around with his walker in different terrain and at school. After lots of hard work and therapy, Angler has begun walking independently around his house.
Sophia will be 4 years old in December. She is from Ocean Springs, Mississippi. She loves music, playing in her kitchen and riding her toy car. She adores her puppies Macy and Cindy. She loves pizza and loves to swim. Sophia has cerebral palsy. She is learning to walk slowly without equipment while her mom holds her hips.
Winston is a four-year-old from Brooklyn, New York. He loves any art activity and he loves to play with trains. Winston has cerebral palsy. Winston travels to Boston, L.A., and Toronto often for intensive therapy. He started walking when he was 2 and a half years old. Winston works out like an Olympian and he loves to sing while doing it.
Meet Rhida and Gheed
Rhida and Gheed are 5-year-old twins from Iraq. They have traveled to the U.S. and Egypt for interventions and therapy to help their mobility. This was a big adventure for their family. They work hard and have lots of fun together. They started school in September. They are both enjoying school and their increased freedom.
Willow is a 4-year-old from Australia. She loves to play with her two sisters. She also loves to read, sing and paint. Willow likes to tell her mom that she is really strong. Willow has cerebral palsy. Willow is in the U.S. this week undergoing a life changing surgery to aid her mobility.
Connection and Celebration
Today, World CP day is about connection and celebration. We celebrate the lives of these kids and the amazing things they are doing in this world.
From New Orleans to Tennessee, Florida, Boston, Michigan, Mississippi, Australia, and Iraq. Most of these children have never met, but I am certain that if they all were in the same room, they would light up the world with all of their strength, beauty, and heart.
We have connected all around the world because together we celebrate every inch and mile stone that our kids reach. We text each other. We send videos. We cry. We laugh, and we lift each other up. We share life-changing interventions and breakthroughs. We share the mundane, the difficult and the extraordinary.