Cristina Perez Edmunds
Cristina Perez is a firm believer that while life is complicated, that is what makes it beautiful. A born and raised New Orleanian and fierce disability advocate, Cristina is a singer, activist, writer and mother to three-year-old “Oskie” — her son with a rare disease. With a mission of giving a louder voice to mothers of children with disabilities and rare diseases, Cristina creates original music inspired by untraditional motherhood, positivity and inclusivity for all. Her latest single, “Lessons I’ve Learned” was released in 2019, as an uplifting anthem for mothers to turn to when things get tough – a motivation to remain strong despite what life throws at you. Cristina also authors a popular blog called “It’s Not Too Complicated,” where she breaks down the trials and tribulations of medically complex motherhood, marriage and everyday life while using her voice to promote rare disease awareness.
The Downstream Effect of COVID-19 on Non-COVID Patients
At this point, we're aware of the real-time effects of COVID on the human body. We're just starting to see what the long term effects may be, and although the medical community is hyperaware...
Raising a Child With a Chromosomal Abnormality :: Chromosome Disorder Awareness Week
This week is Chromosome Disorder Awareness Week, meaning it's the perfect time to tell you what I know about raising a child with a chromosomal abnormality. In this article, I'll answer the most common...
Diary of a Phase 1 Pediatrician Visit
My family has taken COVID-19 precautions very seriously; my husband has only left the house for essential outings, and my son and I haven't left the house in two months except for the occasional...
5 Ways to Stretch Your Groceries
While grocery shopping is an essential outing at this time, it's still better to reduce the number of trips to the store for the safety and health of yourself, your family, and others. Here...
An Open Letter to the Special Needs Moms of COVID-19
Dear Special Needs Momma,I see you.
I see you making it work as you assume the roles of mommy, teacher, and therapist. I see you worrying about your child's mental health, since they can't always...
Quarantine :: It Works
While this new style of living is new to many of you, I've been living in a sort of "quarantine" for the past couple of years. My son, born with a rare chromosome disorder,...